Your place for community & resources to find or create work you love
We are so glad you're here and ready to take the next step! We created 48days.net as a place for community. For people to encourage each other and help each other in finding or creating work that is meaningful.
But frankly, we've outgrown it, so we're moving to provide you new resources.
48Days.net will be closing as it is today on November 30, 2017. Until then current members can click the button below to access groups and resources.
If you're new to 48days.net, connect here for a close up look at our thriving 48 Days Eagles Community and to get weekly free resources and motivation as you find and create work you love.
Several of my readers nominated my blog for the Best Special Needs Parenting Blog award. Even though I am low in the voting I am excited about the exposure it is getting. Both for CHARGE Syndrome…Continue
I love this quote from 48 Days...“Success is never an accident. It typically starts as imagination, becomes a dream, stimulates a goal, grows a plan of action, which then inevitably meets with…Continue
How is that title for a discussion starter? This really is not a question but more an illustration of how opportunities can just happen, if you are watching for them. I was listenening to one of…Continue
The Heart of Sibling of a Special Needs Child
As a parent of a special needs or medically complex child do you ever wonder about how their siblings are doing or cope with it? When we were thrust into this arrangement nearly 15 years ago without warning we were quite concerned as Matthew spent his first month of life in the hospital. And, now that Isaac is nearly 4 years old we have been taken to yet another level of focus and care, we have relaxed. Things do work out.…Continue
Several conversations between my wife and myself and with other families who are caregivers of medically fragile children/special needs lately have been over the times in our lives that are referred to as "normal". The consensus is that we tend to dread them. It sounds quite opposite of what one would expect doesn't it? I hope to shed some light on this and maybe it will speak to you and your family as well.…
Where would you go to find kids randomly laying on the floor, suction machines and vents whirring in the distance, chewy tubes in all colors, feeding tubes and pumps, walkers, hearing aids, interpreters and every imaginable kind of wheelchair...a hospital? No, a weekend oasis where all of the above and more is the norm. Welcome to the 12th Bi-Annual International CHARGE Syndrome Conference. 1,200 people consisting of individuals with CHARGE, families, caregivers and professionals spending 4…Continue
“Hardships often prepare ordinary people for an extraordinary destiny” C.S. Lewis
Let’s see, since the last glimpse into our lives we have moved and have been working non-stop to bring our new home into “safe” and “functional” status. We have celebrated Matthew’s 13th and Sarah Anne’s 5th birthdays. We have participated in 2 county fairs (with one more to go). We just finished an illness outbreak in our home with Isaac lingering the…Continue